My New Alzheimer's Blog

I'm writing a new blog about Alzheimer's, Alzheimer's News & Notes , at the Advice and Info network.  I shall discuss this malady, as well as caregiving,  and answer questions from readers.  I hope you'll find it helpful.

Do stop by Alzheimer's News &Notes and give your input. 

Children's Approach to Alzheimer's

"I make Grandma happy," my granddaughter remarked (7-years old at the time), when someone asked why she visited when her great grandmother (my mother) didn't know her and couldn't talk well.

Kara's response made me realize I hadn't made a mistake to take Kara and her young brother on my visits to see Mother in the nursing home.  They were learning about growing older, forgetfulness, illness and being family.  Caring for one another would become part of their lives.

The youngsters enjoyed their visits.  We had various rituals that Mother enjoyed.  We shared meals or afternoon tea with her.  Kara and Alex joined in activities with the other residents.  (Mother's Alzheimer's was too advanced for her to do this now.)  They drew pictures for her and made cards.  We sang songs.

If you treat the visits as an ordinary part of life, youngsters generally won't be afraid to visit relatives in nursing and assisted living homes.  They'll show fear and reluctance mainly if the adults do. 

These may be Kara and Alex's only memories of my mother, but they'll have fond memories rather than scary or distasteful ones, just as I do.

(Image: sxc.hu)

Finding the Joy in Alzheimer's
Finding the Joy in Alzheimer's (Book II)
(I have essays in both of these books.)

Sharing Comfort Among Alzheimer's Caregivers

"Mary, I'm so glad we talked," Kay said.  "Now I know I'm not the only one experiencing these problems with Mom."

Even though my mom and aunt, both of whom had Alzheimer's, have passed away, I still find that sharing my experiences involving them helps to comfort others and enables others to understand the person they're caring for.  Kay has been caring for her 94 year-old mother, who now is in a nursing home, but seems to have developed Alzheimer's or some form of dementia.  Mom gets mixed up about who people are, suspects those around her of plotting against her, and in general becoming a different person from the one they've known all their lives.

Kay's talk with me seemed to reassure her that what she and her mom were experiencing was "normal" in the circumstances.

So many people don't want to talk about their experiences while caring for a loved one with Alzheimer's.  They want to put it all behind them once that person is gone.  However, if you can find the incentive to share, you just might be helping others.

Something to think about!

(In the above book, Finding the Joy in Alzheimer's, I share some of my experiences with Mother.  Other caregivers have much to share, too.)

Another Alzheimer's Resource

Alzheimer's Weekly & Dementia Weekly Newsletter is delivered to you via e-mail from the Alzheimer's Weekly web site.
Here you'll find many updates about these conditions delivered in a very readable and attractive format.

What Would You Like to Know?

As I get back to writing here about Alzheimer's and caregiving, I'm wondering what my readers would like to know. How can I help you as you deal with Alzheimer's in a loved one? I can't make the situation go away, but perhaps I can help you understand and to encourage you as you go through each day.

Perhaps I can be someone you can share your frustrations with and help you realize you can survive.

Getting Back to Writing about Alzheimer's

Just noticed I have some followers to my blog, so I'd better get posting again! I've been busy with other blogs, one on Parenting at Blisstree, which does contain some Alzheimer's posts.

However, I'll share some more words of encouragement here at Notes from an Alzheimer's Caregiver.

Although I no longer actively care for a family member (both Mother and Auntie have passed away), I do have memories of the trials and joys and hope I can encourage others by sharing.

I also give talks on Alzheimer's and caregiving and provide information about scrapbooking and journaling activities with those experiencing memory loss.

(Image from sxc.hu)

March Blizzard Memories of Alzheimer's Patients

Does your Alzheimer's patient have memories of blizzards and snowstorms, either in their childhood or yours? My grandfather often told us about his experiences in the March 11th Blizzard of 1888 in New York State, when he worked on a farm. Those have become ingrained memories for me, even though I wasn't around in those days. My mom often related the stories Grandpa told of those days. Even in her Alzheimer's years, a big snow storm would set her to reminiscing.

For some reading about the catastrophic Blizzards of 1888, first in the West and then on the east coast:

City of Snow: The Great Blizzard of 1888 by Linda Oatman High.
In All Its Fury: A History of the Blizzard of January 12, 1888 by W. H. O'Gara.
Blizzard! The 1888 Whiteout by Jacqueline A. Ball.
Blizzard!: The Storm That Changed America by Jim Murphy

More recent blizzards & storms:
One to Remember: The Relentless Blizzard of March 1966 by Douglas Ramsey
Northeast Snowstorms by Louis W. Uccellini

Fiction:
Lost in the Blinded Blizzard (Hank the Cowdog) by John R. Erickson

Books About Daylight Saving Time & Spring

Discover facts and figures (the curious and the ordinary) about Spring and Daylight Saving Time

Seize the Daylight: The Curious and Contentious Story of Daylight Saving Time by David Prerau
Spring Forward: The Annual Madness of Daylight Saving Time by Michael Downing
Crafting Springtime Gifts: 25 Adorable Projects Featuring Bunnies, Chicks, Lambs & Other Springtime Favorites by Tone Finnanger
Time for Change: Setting Clocks Forward by One Hour Thorughout the Year by Mayer Hillman
The Divine Hours: Prayers for Springtime by Phyllis Tickle

Pictures Prompt Memories for Alzheimer's Patients

I've discussed, over at my Alzheimer's Notes blog, Capture Memories of Alzheimer's Patient's Earlier Days & Travels, by referring to photos. I recalled, as I was looking at a family photo of us at the Nubble Light in Cape Neddick, Maine, childhood vacation memories and marveled at my father and mother's patience when traveling with four children in a small car.

Check out the post and see what ideas and memories photos will spark for you and your Alzheimer's patient.

Alzheimer's Caregiver Blogger Published in Anthology

Alzheimer's Caregiver blogger, Mary Emma Allen has stories featured in the new release, Eternally Yours, an anthology of poetry, light essays, devotions and meditations, edited by Mary Ellen Grisham and published by Xulon Press.

Featuring some of the best Christian writers on the Internet, this book represents work that has appeared in the Eternal Ink E-zine since it’s inception in 1999.

In addition, Mary gives presentations and teaches workshops at schools, libraries, writers’ conferences, and for other groups. Some of her talks include topics such as Alzheimer's and caregiving, quilt history and quiltmaking, New Hampshire history, and writing.

I was pleased when Ms. Grisham selected some of my stories for inclusion in this anthology. It's exciting to encourage and inspire others with my writing.

Winter Reading on a Snowy Day in Alzheimer's World

We're digging out from a blizzard that left 12-16 inches of snow, depending on whether it drifted or not. Along with show shoveling tasks, reading is on the agenda today because the grandchildren are home on winter break.

We are a family of readers in our multi-generational home (grandfather, granny, mom, dad and the two children). Books abound around the house, the library is a fun place to visit, bookstores (new and used) hold a fascination, and online bookstores are enjoyable to access. We also come from ancestors who were readers and writers, too.

Reading in an Alzheimer's World

My mother enjoyed reading, too. She could sit midst clutter in her kitchen and read. When any of us remarked that there were dishes to be washed, a floor to sweep, windows to clean, etc., Mother replied, "The chores will always be there. But I might not always be able to read."

How true this turned out to be! When Mother developed Alzheimer's, she followed words with her finger in a magazine and repeated them aloud. Eventually, she could no longer do that, so a staff member or I read to her. Then she looked at magazine pictures, after she couldn't understand words. These often brought memories they brought to mind.

Reading brought Mother pleasure and learning for many years. I even have a read book she used in school in the early 1900s. It was one of the last activities she gave up during her Alzheimer's years.

What are you and your Alzheimer's patient reading this winter?

Valentine's Day in Alzheimer's World

Do you and your family participate in Valentine's Day festivities? Does your Alzheimer's patient join in? Does this bring back memories for them?

This was a fun family day when I was a youngster because Mother made it so. She had been a school teacher and held parties for her students. Thus, she incorporated some of these ideas into festivities for my sister, two brothers and me, even though she was a busy farm wife.

*Mother often decorated a cake with white frosting and red hearts. When we were old enough, sister and I did this for her.
*She helped us with making and addressing valentines for family members. When we were in school we had exchanges there, too.
*Mother planned a special night meal for Valentine's Day, with the cake and fruit for dessert. There was only our family...four children, Mother, Father and the hired man...but we had a joyous time.
*We made decorations to hang around the kitchen (the warmest room in our farmhouse during winter), and name cards for each place setting.

Suggestions:
The Night Before Valentine's Day (picture book)
Where Is Baby's Valentine (lift-a-flap book)
My Fuzzy Valentine (Sesame Street Board Book)
Be My Valentine, Charlie Brown (DVD)
Disney Valentine Assortment

What do you and your family do for Valentine's Day at your house?

Tea Parties for Alzheimer's Patients

If you are considering tea parties for the Alzheimer's patients or other caregivers in your life...and they can be such fun activities for all of you...you might like to check out these posts at my Alzheimer's Notes blog.

Tea Time at Alzheimer's Notes - Caregivers Sharing
Tea Time at Alzheimer's Notes - Tea Time With Mother

Giveaways Just for Fun...Here Are Some With Gifts for Youngsters

One Book Two Book Giveaways

Fan of giveaways? You'll find a series of them at a blog I co-author, One Book Two Book, running from Dec. 2-7.

Check out the rules and leave comments at the following links. You can enter any or all of the giveaways. These will make great Christmas gifts for youngsters, too. Enjoy!

Book Swim Giveaway
Readeez DVD Giveaway
Baby Can Read Giveaway
Wii Pop Star Guitar Giveaway
Fly Me To The Moon Giveaway
Giveaway - Celebrity Arthur Book from Speakaboos
Giveaway - Countdown to Bedtime Soundbooks
Giiveaway - ECO Baby Organic Playdough
Baby Potential Teacher Onesie Giveaway
Natural Pod Giveaway
RideMakerz Giveaway
Happy Green Bee Giveaway
Mead Writing Fundamentals Giveaway

Enjoy the Small Triumphs of Caregiving

Caregiving Triumphs

As you go through the day to day tasks and frustrations of caregiving for an Alzheimer's patient, you may not think you're experiencing triumphs. However, train yourself to look for these, write them down, and share them.

At my Alzheimer's Notes blog, some of my readers have shared theirs in the post, Enjoying the Small Triumphs of Caring for Alzheimer's Patients.

What have been some of your triumphs?

Finger Foods for Alzheimer's Patients

Finger Foods

After a certain point, it becomes difficult for Alzheimer's patients to manipulate eating utensils (cutlery). So finger foods become ideal for them. I've had numerous questions about preparing this food and what caregivers can serve for variety.

We have a very good guest post over at Alzheimer's Notes with foods and recipes from a specialist in this area. Venture over for Alzheimer's Finger Foods Suggestions.

Voting By Dementia/Alzheimer's Patients...Should It Be Allowed?

Voting or Not to Vote?

This question arises as election time approaches and is especially of concern during Presidential Elections.

I've written about this at my Alzheimer's Notes blog at b5media and received some interesting comments. You may want to check my posts out and see what you think of this situation.

Should Dementia/Alzheimer's Patients Vote?

More on Voting and Alzheimer's Patients

What do you think?

Alzheimer's Patients & Voting

Should Alzheimer's Patients Vote?

This is a question that baffles many people, especially family members of Alzheimer's patients. Check out my discussion on this topic at Alzheimer's Notes, Should Dementia/Alzheimer's Patients Vote?

Since this is a right, do we have a right to take it away from them? If so, when? Who should determine whether there is a time when they really don't know what they're doing?